The Ciara Lawlor Memorial Walk and Run 20th May 2018 - 10.30 am
A RUN WITH THE SENIORS - STARTS 10:30am
REGISTER FOR THE SENIOR RUN ON-LINE BELOW
On May the 20th the Ciara Lawlor Memorial will hold a walk in the Castle Park raising funds for Ataxia Foundation Ireland. The Lawlor Family have been great friends and supporters of O'Loughlin Gaels GAA & Camogie and the club now wishes to invite all members of the community to unite and support the Lawlor Family in this fundraising effort in Ciara's name . Ciara sadly was taken from us far too young..she is daughter to John & Eimear, sister to players Jack & Barry, cousin to Huw and friend to so many. Her presence around the club is missed by all who know her.
The Senior Players will Run the 5k distance at 10:30am on May 20th and invite all players, juvenile players and supporters from both the hurling and camogie clubs to join them to Run with Ciara and raise funds for the charity chosen by the Ciara Lawlor Memorial, Ataxia Foundation Ireland. Ciara's good friend from secondary school has Friedreich's Ataxia. (See more about Friedreich's Ataxia below)
Please chose your way to pariticpate below by registering on-line now to take part and donate to this valuable charity or register directly with Eoin Lawlor (Juvenile teams), Paul Cleere (Adult Teams) and Linda O'Leary (Camogie). As O'Loughlin Gaels Community you are invited to wear the white & green club colours on the day in support of the Lawlor Family and Ataxia Foundation Ireland and run/walk in advance at 10.30am
100% of all funds raised will be presented to the Lawlor Family on behalf of the club in order to be included in this fundraising effort for Ataxia Foundation Ireland
The Senior Players will Run the 5k distance at 10:30am on May 20th and invite all players, juvenile players and supporters from both the hurling and camogie clubs to join them to Run with Ciara and raise funds for the charity chosen by the Ciara Lawlor Memorial, Ataxia Foundation Ireland. Ciara's good friend from secondary school has Friedreich's Ataxia. (See more about Friedreich's Ataxia below)
Please chose your way to pariticpate below by registering on-line now to take part and donate to this valuable charity or register directly with Eoin Lawlor (Juvenile teams), Paul Cleere (Adult Teams) and Linda O'Leary (Camogie). As O'Loughlin Gaels Community you are invited to wear the white & green club colours on the day in support of the Lawlor Family and Ataxia Foundation Ireland and run/walk in advance at 10.30am
100% of all funds raised will be presented to the Lawlor Family on behalf of the club in order to be included in this fundraising effort for Ataxia Foundation Ireland
ABOUT FRIEDREICH'S ATAXIA
Ciara's good friend from secondary school has Friedreich's Ataxia. Friedreich's Ataxia is a genetic and progressive disorder of the central nervous system. It is an inherited degenerative of the spinal chord that becomes thinner, and usually begins in childhood between the ages of 5 to15. it worsens over time spreading from the arms to the body. The disorder also causes problems in the heart and spine, and some people with the condition develop diabetes. The disorder does not affect thinking and reasoning abilities (cognitive functions).
Symptoms typically begin between the ages of 5 and 15 years, although they sometimes appear in adulthood and on rare occasions as late as age 75. The first symptom to appear is usually gait ataxia, or difficulty walking. The ataxia gradually worsens and slowly spreads to the arms and the trunk. There is often loss of sensation in the extremities, which may spread to other parts of the body. Other features include loss of tendon reflexes, especially in the knees and ankles. Most people with Friedreich's ataxia develop scoliosis (a curving of the spine to one side), which often requires surgical intervention for treatment.
Dysarthria (slowness and slurring of speech) develops and can get progressively worse. Many individuals with later stages of Friedreich’s ataxia develop hearing and vision loss.
Other symptoms that may occur include chest pain, shortness of breath, and heart palpitations. These symptoms are the result of various forms of heart disease that often accompany Friedreich's ataxia, such as hypertrophic cardiomyopathy (enlargement of the heart), myocardial fibrosis (formation of fiber-like material in the muscles of the heart), and cardiac failure. Heart rhythm abnormalities such as tachycardia (fast heart rate) and heart block (impaired conduction of cardiac impulses within the heart) are also common.
About 20 percent of people with Friedreich's ataxia develop carbohydrate intolerance and 10 percent develop diabetes. Most individuals with Friedreich’s ataxia tire very easily and find that they require more rest and take a longer time to recover from common illnesses such as colds and flu.
The rate of progression varies from person to person. Generally, within 10 to 20 years after the appearance of the first symptoms, the person is confined to a wheelchair, and in later stages of the disease individuals may become completely incapacitated
AFI Ataxia Foundation Ireland is a group set up in 2016 by members to support members with Ataxia, and is completely voluntary. It was set up after a financial scandal was uncovered in Ataxia Ireland. AFI give advice and assistance in securing respite care, purchasing equipment, physiotherapy, advocacy matters, respite, counseling or nursing care from our liaison nurse. https://afi.ie/
Symptoms typically begin between the ages of 5 and 15 years, although they sometimes appear in adulthood and on rare occasions as late as age 75. The first symptom to appear is usually gait ataxia, or difficulty walking. The ataxia gradually worsens and slowly spreads to the arms and the trunk. There is often loss of sensation in the extremities, which may spread to other parts of the body. Other features include loss of tendon reflexes, especially in the knees and ankles. Most people with Friedreich's ataxia develop scoliosis (a curving of the spine to one side), which often requires surgical intervention for treatment.
Dysarthria (slowness and slurring of speech) develops and can get progressively worse. Many individuals with later stages of Friedreich’s ataxia develop hearing and vision loss.
Other symptoms that may occur include chest pain, shortness of breath, and heart palpitations. These symptoms are the result of various forms of heart disease that often accompany Friedreich's ataxia, such as hypertrophic cardiomyopathy (enlargement of the heart), myocardial fibrosis (formation of fiber-like material in the muscles of the heart), and cardiac failure. Heart rhythm abnormalities such as tachycardia (fast heart rate) and heart block (impaired conduction of cardiac impulses within the heart) are also common.
About 20 percent of people with Friedreich's ataxia develop carbohydrate intolerance and 10 percent develop diabetes. Most individuals with Friedreich’s ataxia tire very easily and find that they require more rest and take a longer time to recover from common illnesses such as colds and flu.
The rate of progression varies from person to person. Generally, within 10 to 20 years after the appearance of the first symptoms, the person is confined to a wheelchair, and in later stages of the disease individuals may become completely incapacitated
AFI Ataxia Foundation Ireland is a group set up in 2016 by members to support members with Ataxia, and is completely voluntary. It was set up after a financial scandal was uncovered in Ataxia Ireland. AFI give advice and assistance in securing respite care, purchasing equipment, physiotherapy, advocacy matters, respite, counseling or nursing care from our liaison nurse. https://afi.ie/